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Young Onset Dementia in Care

Young onset dementia affects people under 65 and often brings different symptoms, different pressures, and longer journeys to diagnosis. Developed by Able Training in partnership with Dementia Forward, this half-day course builds understanding of what young onset dementia is, the conditions that can cause it, and why it can be missed or misunderstood.

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Understanding dementia under 65 and the unique challenges facing individuals, families, and professionals

Young onset dementia affects people under the age of 65 and is often misunderstood, misdiagnosed, or recognised too late. Because it occurs at a very different life stage, the impact can be profound – affecting employment, parenting, relationships, finances, and identity. This course explores what young onset dementia is, how it differs from later-life dementia, and the conditions most commonly associated with it, including Alzheimer’s disease, frontotemporal dementia, aphasia, and posterior cortical atrophy.

Through a mix of evidence-based learning and real-world insight, participants will develop a clearer understanding of the diagnostic challenges, the lived experience of younger people with dementia, and the ripple effect on families and support networks. The session also focuses on practical, age-appropriate approaches to communication, care, and support, helping professionals and families respond with greater confidence, compassion, and effectiveness.

What you'll learn.

  • What dementia is and how young onset dementia differs from later-life dementia

  • Common myths and misunderstandings around dementia in younger people

  • The conditions most often linked to young onset dementia, including Alzheimer’s disease, frontotemporal dementia, aphasia, and posterior cortical atrophy

  • Why diagnosis is often delayed and the impact of ‘lost time’ on individuals and families

  • The emotional, social, and practical challenges faced by people living with young onset dementia

  • The impact on work, relationships, parenting, and identity

  • Hereditary and familial forms of young onset dementia

  • Communication difficulties, including aphasia, and practical strategies to support understanding

  • Barriers to age-appropriate services and support

  • Practical ways to improve care, communication, and support for people and their families

Who is Young Onset Dementia in Care for?

This course is designed for anyone supporting, working with, or affected by young onset dementia, including:

  • Health and social care professionals working in community, hospital, or care settings

  • Dementia support workers, care coordinators, and voluntary sector staff

  • Social workers and multidisciplinary teams

  • Employers, HR professionals, and workplace wellbeing leads supporting staff affected by dementia

  • Educators and professionals working with children and young people impacted by a family member’s diagnosis

  • Family members, partners, and friends supporting someone living with young onset dementia

The course is suitable for both professionals and family supporters who want a clearer understanding of young onset dementia and practical ways to respond with confidence and compassion.

What are the learning outcomes?

By the end of this course, attendees will:

  • Have a clear understanding of what young onset dementia is and how it differs from later-life dementia

  • Be able to recognise common presentations and conditions associated with young onset dementia

  • Better understand why diagnosis is often delayed and the impact this has on individuals and families

  • Gain insight into the lived experience of people with young onset dementia and those close to them

  • Develop greater confidence in supporting people at a different life stage, including work, family, and social roles

  • Improve communication approaches, particularly when supporting people with aphasia or visual processing difficulties

  • Be better equipped to provide age-appropriate, person-centred support

  • Leave with practical strategies they can apply immediately to improve care, understanding, and inclusion

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Frequently Asked Questions

What does young onset dementia look like?
Young onset dementia, also known as working age dementia, affects people under 65 and often looks very different to later-life dementia. It can show up as personality changes, difficulty at work, language struggles, memory issues, or movement problems – often mistaken for stress or mental health concerns. Unlike traditional dementia, it impacts careers, parenting, and relationships, and is frequently misdiagnosed or misunderstood. Early recognition and age-appropriate support are crucial to helping individuals live well and maintain identity, purpose, and dignity.
Young onset dementia is diagnosed when symptoms of dementia begin before the age of 65. It’s sometimes called early-onset dementia or working age dementia, because it affects people who are often still in employment, raising families, or managing mortgages and active social lives. While the average age of diagnosis is typically in the 50s or early 60s, symptoms can begin as early as the 30s or 40s in rare cases. Because dementia is commonly associated with older age, young onset cases are often missed or misdiagnosed—delaying access to vital support and services. That’s why awareness, early recognition, and age-appropriate care are so important.
Frontotemporal dementia (FTD) is a form of young onset dementia that primarily affects the frontal and temporal lobes of the brain—areas responsible for personality, behaviour, language, and decision-making. It’s most common in people aged 45 to 65, and often misdiagnosed as depression, anxiety, or even midlife crisis due to its unusual presentation.

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